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Our new partnership with Cauda Equina Spinal Cord Injury (CESCI)

Cauda Equina Spinal Cord Injury (CESCI) logo

We’re pleased to announce our new partnership with Cauda Equina Spinal Cord Injury (CESCI)

CESCI is a support group dedicated to helping people living with cauda equina syndrome (CES) find resources and support. They are a community of individuals who understand the challenges of living with CES and strive to help one another. Their website is a great place to find information about the condition and connect with others who are going through similar experiences. They offer blogs, events, and links to helpful resources. Their goal is to provide a safe and supportive space for those living with CES to find the help they need.

Last year SIA and CESCI came together with the NHS to develop a new care pathway for people with cauda equina syndrome. As a result of this work, more and more people with CES are being identified in the health system every year. This strategic partnership will help us to meet this growing need for support together and to form a stronger voice when fighting for the correct services and treatment from statutory services.

Nigel and Allison Whitehorn, co-founders of CESCI said:

“We are excited to be working together with SIA , who have a great understanding of the challenges faced daily, living with cauda equina / spinal cord injury, which is not recognised and understood as a SCI by many medical professionals.  

“We are proud SIA and CESCI will be working alongside one another in partnership.  This will enable us all to grow stronger together in the future helping CES people be understood.”


Dan Burden, our head of services said:

We have been recommending CESCI to the people we support with cauda equina syndrome for a long time now. CESCI offers a safe place for people to come together, speak with others who have been through what they are going through and find the peer support which we know is so essential after spinal cord injury. This partnership will help both of our organisations to grow stronger together, better meeting the needs of the growing number of people diagnosed with CES every year.”

Visit the CESCI website here